Key Resource for COVID Long-Haulers

posted in: Discovery, Pandemic | 0

If you are a COVID long-hauler, it’s important not to try to tough it out, not to try to push through. Many chronically ill people can tell you all about how doing that (such as “graded exercise” promoted by certain doctors) will make you more ill than you are now, and you may never be able to climb back to where you were when they got you to try it.

Addendum About COVID-19 Long-Haulers

posted in: Discovery, Pandemic | 0

But they are still missing a connection with people who have been living for years with other chronic illnesses. That means they are having to reinvent the wheel about how to live with many of their symptoms. The spark that made CI Forum so valuable was the overlap between what people with different illnesses went through. People with MS, chronic Lyme disease, ME/CFS, systemic lupus… turned out to have a lot of challenges in common, from symptoms to stigma to getting through the day. Forum members shared coping methods across illness boundaries.