If you are a COVID long-hauler, it’s important not to try to tough it out, not to try to push through. Many chronically ill people can tell you all about how doing that (such as “graded exercise” promoted by certain doctors) will make you more ill than you are now, and you may never be able to climb back to where you were when they got you to try it.
Please stick with me through this post. It only begins with business and the pandemic. We have even bigger things to think about. Much of the UK where I live is in lockdown or about to be in lockdown again. … Continued
Not everyone who rides it out is crazy. And Laura is not Rita. I can definitely understand if some people who would ordinarily evacuate decide that they are going to stay put unless there truly is no other option.
Government permission to ease lockdown does not mean it is safe, especially where the government is more focused on the economy than on the safety of its people. Please look after yourself and people you care about accordingly.
Where operating in this pandemic is feasible, the businesses faring best aren’t simply lucky or even simply resilient. Look at the character of those businesses and the trade-offs they chose to be that way. I don’t know a single word for it, but perhaps that’s the new ideal.
But they are still missing a connection with people who have been living for years with other chronic illnesses. That means they are having to reinvent the wheel about how to live with many of their symptoms. The spark that made CI Forum so valuable was the overlap between what people with different illnesses went through. People with MS, chronic Lyme disease, ME/CFS, systemic lupus… turned out to have a lot of challenges in common, from symptoms to stigma to getting through the day. Forum members shared coping methods across illness boundaries.
Governments are still responding to the immediate crisis. It’s up to us to look ahead, make plans, and start putting together a better solution for COVID-19 long-haulers… and, while we’re at it, for all the other chronically ill people in a similar pickle.
Any country that does not wrestle this novel coronavirus down to low prevalence is making its population a viral reservoir. By doing so, each such country endangers the entire world. It may spawn a mutation that is even worse than what we face now, more lethal or more disabling.
SpaceApps is an international hackathon to find ways to use NASA’s freely available data to tackle real-world issues. It’s been happening since 2012. Due to COVID-19, this year it’s happening in cyberspace 30-31 May and the target is the pandemic.
We don’t have to look a century back to see other episodes where people needed to radically modify their behavior to fend off a rampaging disease. In deciding how to step into a future of fending off COVID-19 while we have no effective vaccine or treatment for it, remember that you may not need to invent all your coping mechanisms. You may be able to borrow some from the past. Your parents or grandparents may already know some of the answers you need.
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